It has been a while since I’ve written with the intention of it being read publicly. I’m not even sure of what my intentions are at this point. To be honest, my heart is pounding as I sit here attempting to hash out my thoughts. My hands are shaking slightly, as they always do now. I feel very alive in what is coming up.
It has been a very long time since I’ve allowed myself to be alone. Alone in the sense of being on that journey through self discovery- shaking hands with your inner demons, laughing at your flaws, exploring the essence of who you really are… Being in a relationship for four years served as a buffer, in a way, between me consciously tackling these underlying and necessary experiences. I’ve always been overly aggressive with the way that I have chosen to battle uncomfortable situations within myself. I think it’s one of my greatest strengths, but it has also gotten me into a lot of trouble.
Living with Hereditary Angioedema has become so normal to me at this point. The UPS man just walked in with a months supply of my plasma treatments, and I don’t think twice about it. I don’t fear death like I used to. In a way, I am completely comforted by the fact that I could go at any time- it has taken me a very long time to get to this point. I feel amazing in my physical yoga practice right now; something has recently clicked in me where I have the ability to genuinely surrender to what my body is capable of doing. Fears of airway obstruction don’t come up like they used to while I’m practicing. In terms of me I feel great.
What I am not okay with, is the fact that there is a 50/50 chance of passing my disease on if I choose to reproduce. I have always known this and I thought there was a time when I was actually content with that… I’m seeing now that I am not. Every part of my being has always wanted kids. Not now, of course, but I’ve always known I would eventually. Insecurities, fears, and an immense amount of sadness are smacking me in the face right now. I don’t feel alright about being responsible for another being having to live with an incurable disease. And the thought of not having my own biological kids is very painful, even if it is selfish. What if someone wont want to have kids with me because of this? What if I never have kids? What if I fail at the most basic human goal in life? These are the fears floating around in my mind. It almost makes me laugh seeing them typed out. Right now I don’t have the security of someone reassuring me that it is okay, acceptable, and perfectly fine to have kids or even just feel this way. I am alone in the way I feel. In a strange sense, these fears feel fluid. They don’t feel like something I need to fight against, just something I need to process.
My happiness right now comes from my actions in the world. I am truly happy because I am surrounded by realities that I have created. I live for stoking people out and the thought of one more person being happy, successful, or having a better day because of something that I am able to do, truly makes my heart sing. So it’s interesting for me to be straddling this duality of emotions. I believe that if you don’t have intense waves of fear than you aren’t really living. And right now I feel very alive. Over and out.
You feel your strength in the experience of pain. It’s all in how you carry it. That’s what matters. Pain is a feeling. Your feelings are a part of you. Your own reality. If you feel ashamed of them, and hide them, you’re letting society destroy your reality. You should stand up for your right to feel your pain.